Soon after Ocean was born, she developed chronic ear infections, sleep apnea, and severe stiffness in her joints. When she visited USA Health Children’s & Women’s Hospital, her care team diagnosed her with Hurler Syndrome, a rare enzyme deficiency. Every Wednesday for the past six years, Ocean and her mom have visited the hospital for enzyme replacement infusions that significantly alleviate her symptoms. However, these visits have become much more than a medical experience for Ocean. From the time she walks through the door to when she leaves, she is met with excitement and support from her care team. Ocean has formed close friendships with other patients and even steps up to guide other children undergoing similar treatments. While there is no known cure for her diagnosis, these enzyme infusions have helped her flourish. Today, she loves singing, dancing, and helping her mom teach exercise classes. Ocean will continue to receive her treatments, which she always looks forward to, thanks to her dedicated, compassionate team.