The summer before her senior year of high school, Evonne was enjoying a family vacation in Puerto Rico, excited to go cliff jumping for the first time. When she was getting ready to jump, she got scared and tumbled backward, resulting in a severe spinal injury that left her partially paralyzed from the waist down. Evonne had to be airlifted back to Boston for spinal surgery. After the procedure, Evonne’s real battle started. She had to regain her strength and relearn how to walk. She was transferred to Franciscan Children’s for specialized rehabilitative care, where she was determined to get better for her senior year. Through intensive physical and occupational therapy, as well as music therapy to keep her spirits high, Evonne made remarkable progress. Thanks to her dedicated care team and Evonne’s motivation, she was discharged within two and a half months and got to live out her senior year dreams. She danced all night at her senior prom and walked across the stage to receive her high school diploma, things she didn’t know would be possible after her accident. Today, Evonne is thriving in college and even ran in the annual Franciscan Children’s Road Race!

Because of her congenital heart disease, Heather had a high-risk pregnancy and had to deliver her baby, Lily, a few weeks early via C-section. When Lily was born, a breathing tube was immediately inserted to help her breathe while they transferred her to the NICU at Joe DiMaggio Children’s Hospital. A few years prior, Heather’s baby boy spent two months in the NICU at the same hospital, where he received life-saving care. So, the moment Heather handed Lily over to the NICU team, she knew she would receive the best possible care, just like her son did. As Lily grew stronger in the NICU, the nurses brought Heather to the unit a few times to see her. These early visits allowed Heather to bond with Lily in her first few weeks of life. Heather is exceptionally grateful she had a team that reassured her and made her feel comfortable throughout Lily’s entire NICU stay. Today, Lily is a healthy baby enjoying life at home with her family.

When a 22-week routine sonogram detected an irregularity in Oaklee’s heartbeat, a care team referred the family to John R. Oishei Children’s Hospital in Buffalo, NY. They discovered that Oaklee had supraventricular tachycardia, which causes the heart to beat faster than usual. For eight days, doctors worked hard to regulate his heartbeat. However, once his heart was stabilized, the clinicians found that Oaklee’s mother had placenta accreta, which often causes premature delivery. For the next twelve weeks, a dedicated team care team closely monitored her and the baby’s health and soon found that Oaklee also had a cleft lip. Once again, the team at Oishei Children’s Hospital stepped up to guide the parents through his new diagnosis. At 34 weeks, doctors determined it was time to deliver Oaklee. While Oaklee’s mother was nervous about being under different care than her routine OB/GYN, the dedicated team held her hand through hours of surgery and a 13-pint blood transfusion. After 19 days in the NICU, Oaklee went home. In 2021, Oaklee underwent surgery to receive his forever smile, and today he is thriving! His parents are forever grateful for the incredible care and compassion they received during every step of their health journey.

When four-year-old Mayia stopped using her right side, her parents were immediately concerned and took her to Children’s Mercy Kansas City. There, Mayia’s medical team discovered she had a tumor with two cysts pushing on the left side of her brain, interfering with her right-side mobility. The tumor, a metastatic ganglioglioma, proved too difficult to remove through brain surgery and did not respond to chemotherapy. Mayia’s doctor wanted to try a new drug combination, but the medications weren’t on the market yet. Her dedicated care team worked hard to petition the drug company and the FDA for approval. Once they were approved, Mayia could use the new medications as part of a research trial. Mayia’s tumor responded well to the treatment, and she finally started feeling like herself again. The FDA recently approved the drugs for public use, so Mayia and her family can now receive the prescriptions from the pharmacy. Mayia has been on the medications for over a year, and it’s fully halted her tumor growth! In another year, her care team will taper her off the medications and continue to monitor the tumor’s response. Today, she’s an outgoing six-year-old who loves playing outside, going on walks, and hanging out with her older brothers.

Just days after birth, doctors diagnosed John Josiah with cerebral palsy, epilepsy, and scoliosis. They told John J.’s parents that he would never be able to walk, talk, or even eat on his own. However, when the family moved to Texas, their luck took a turn. John J. began care at the Driscoll Children’s Hospital, and it gave more hope than they had ever been given. Years and years of treatment, combined with John J.’s incredible determination, led to what doctors said to be impossible. John J. walked, started talking, and he began to live a fuller life. Now, at 18 years old, John J. has reached another momentous milestone: walking the stage at his high school graduation! Through it all, his bright smile has never faded. Thanks to his dedicated care team and John J.’s resilience, he has grown into a strong young man who continues to defy all expectations.

Mikari was just 2-years-old when she visited Loma Linda University Children’s Health for an enlarged heart. Her doctors determined she had heart failure and diagnosed her with dilated cardiomyopathy, a condition that weakens the heart muscle and hinders its pumping ability. At first, Mikari’s treatment involved medication and monitoring, but two years later, doctors determined that she needed a new heart. While she was waiting for a heart transplant, her team gave her a mechanical ventricular assist device to keep her heart pumping. As her care team continued to monitor her, they set up scavenger hunts, dance parties, and fun activities to keep her busy during the stressful waiting period. Then, five months later, a heart became available. The next day, Mikari underwent a successful surgery. After a few weeks of additional monitoring, Mikari was discharged. Today, she is a vibrant six-year-old girl who loves school and dreams of traveling the world. Mikari continues to visit Loma Linda University Children’s Health for routine check-ups and is thriving with her new, healthy heart.