Like many other college students, Jayden Goss was attending an Arizona State University basketball game. But as he was waiting for the game to start, he suddenly stopped being able to form words. Jayden soon discovered he had experienced a stroke. He struggled to find hospitals that could help him, but eventually Jayden wound up at Phoenix Children’s where they took a closer look at his heart. They diagnosed Jayden with three rare congenital heart defects that he had lived with since his childhood without knowing. Jayden underwent open heart surgery and later got a tattoo of his surgery date to commemorate this life-changing time. Phoenix Children’s is the only Adult Congenital Heart Disease (ACHD) treatment program in Arizona and the Southwest. While Jayden had to miss a whole year of college, he is ecstatic to return to ASU in the Spring of 2024.

In early 2023, St. Louis Children’s Hospital launched the country’s first-ever mobile pediatric diabetes unit. The Healthy Kids Express Diabetes Mobile Unit now travels to schools, where Washington University Physicians provide care to diabetic children while educating them on how to manage their condition. The mobile unit’s team trains school nurses to administer insulin shots and glucose monitoring machines to support children in the classroom. St. Louis’s diabetes mobile unit is also helping to overcome socioeconomic barriers by delivering care to children in low-income areas who may have limited access to healthcare and healthy foods. As diabetes continues to be one of the most common chronic diseases among children, this traveling unit is incredibly essential. The Healthy Kids Express Diabetes Mobile Unit will continue to bring necessary and accessible diabetic care to children across northern St. Louis County. This unit was made possible thanks to generous donations to the St. Louis Children’s Hospital Foundation.

Two days after Kitson was born, doctors discovered an open atrioventricular canal in her heart—a familiar yet frightening condition that commonly impacts infants with Down Syndrome. Filled with confusion and fear, Kitson’s family found themselves at Cook Children’s Health Care System in Fort Worth five months later, where the Cardiac Intensive Care team met them with open arms. As they operated on her for several hours, the team went the extra mile to comfort Kitson’s family as they paced the hospital awaiting news. But after a successful surgery, she quickly developed pulmonary hypertension. The care team returned to the drawing board, carefully tailoring a treatment plan that helped her lungs become strong again. Throughout Kitson’s journey, the staff never hesitated to make her family feel loved and encouraged, providing a circle of support when they needed it most. Kitson is now back home in New Mexico, a happy and spunky baby. The team at Cook Children’s continues to offer guidance from afar and will forever hold a special place in the Bell family’s hearts.

As Sara and Dan awaited the delivery of their first child, Hayden, an update from the Doctor brought a sudden turn of events. Their anticipated 7-pound baby would enter the world at 9 pounds. When babies like Hayden are bigger, they pose more challenges during labor and are at higher risk of developing brachial plexus birth palsy – a condition when the nerves from the neck down to the arm and hands can become injured during birth. At Hayden’s two-month check-in, he was diagnosed with brachial plexus birth palsy and began daily physical therapy at the UPMC Children’s Hospital of Pittsburgh’s Brachial Plexus Clinic. As he made notable progress at physical therapy, he hadn’t entirely regained full range of motion, and doctors decided surgery would be the next best step. Hayden championed his 6-hour reconstructive surgery and attended routine check-ups over the next year. After an incredible recovery, 3-year-old Hayden is no longer limited by functional issues and enjoys climbing, swinging, and playing outside!

By the time Regan was six years old, he had already undergone four open heart surgeries and one heart transplant. Because of these surgeries, Regan now has to get blood drawn for lab tests regularly. But with his numerous medications and all the blood draws he’s had over the years; his veins can be tricky to access. The draw station he was frequenting experienced staff transitions, and the newer nurses, unfamiliar with Regan’s complexities, often accidentally poked him and wore out his veins trying to draw blood. With his complexities, his family quickly reached out to MercyOne Children’s Hospital and was met with specialized pediatric nursing staff who could efficiently draw Regan’s blood and send it over to his physician. Now, Regan routinely visits his care team at MercyOne Children’s Hospital, where he gets his labs drawn as necessary without any anxiety.

When a young boy was diagnosed with an optic glioma brain tumor, he and his family uprooted their life in Tehran, Iran, traveling 6,000 miles to Seattle Children’s Hospital. Once he arrived at the hospital, he found a specialized team who understood his condition and could offer the chemotherapy and radiation he needed. After nearly four years of treatment, he continued to attend routine endocrinology appointments and receive MRIs to ensure the tumor was stable. During all these years spent frequenting the hospital, he formed long-lasting bonds with the staff who offered him love and support throughout his journey. Especially as he balanced his health battle with living in a new country and learning a new language, his care team became a second family, ultimately inspiring him to follow in their footsteps. Today, he’s a healthcare professional at Seattle Children’s and spends his time uplifting patients and families in the same way his team did for him.