When four-year-old Mayia stopped using her right side, her parents were immediately concerned and took her to Children’s Mercy Kansas City. There, Mayia’s medical team discovered she had a tumor with two cysts pushing on the left side of her brain, interfering with her right-side mobility. The tumor, a metastatic ganglioglioma, proved too difficult to remove through brain surgery and did not respond to chemotherapy. Mayia’s doctor wanted to try a new drug combination, but the medications weren’t on the market yet. Her dedicated care team worked hard to petition the drug company and the FDA for approval. Once they were approved, Mayia could use the new medications as part of a research trial. Mayia’s tumor responded well to the treatment, and she finally started feeling like herself again. The FDA recently approved the drugs for public use, so Mayia and her family can now receive the prescriptions from the pharmacy. Mayia has been on the medications for over a year, and it’s fully halted her tumor growth! In another year, her care team will taper her off the medications and continue to monitor the tumor’s response. Today, she’s an outgoing six-year-old who loves playing outside, going on walks, and hanging out with her older brothers.