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Pediatric partnership brings Disney magic to Rezen

Kapi’olani Medical Center for Women & Children has been Rezen’s home away from home for more than a year. The 10-year-old was diagnosed with aplastic anemia, a rare and life-threatening blood disorder. Last year, she received a bone marrow transplant and spent months in the Pediatric Intensive Care Unit. Despite these challenges, moments of joy and comfort shine through her journey. When Rezen was nervous before a routine MRI, her child life specialists gave her a Disney Princess-themed Starlight Hospital Gown to add a little magic to her stay. The Walt Disney Company and the nonprofit Starlight Children’s Foundation bring Disney Princess-themed Starlight Hospital Gowns to pediatric hospitals across the nation, helping patients like Rezen feel more comfortable during treatments. Through this long-standing collaboration, Rezen has received numerous princess gowns, building up an impressive collection. In December, Rezen completed her princess collection, receiving a Moana-themed gown, and attended a special private showing of Moana 2, experiencing the movie’s adventure before its official release! Navigating a rare disease comes with immense obstacles, but collaborations like this bring light on difficult days. Disney-themed Starlight programs, along with her care team, help make Rezen and thousands of other pediatric patients feel the magic and inspiration every child deserves.

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An innovative ear reconstruction helps Luca build his confidence  

Because of a congenitalcondition called hemifacial microsomia that causes one side of the face to be underdeveloped, Luca was born without a left ear and ear canal and had complete hearing loss on the left side. As a toddler, he used a special hearing aid and attended a school for deaf students to develop social and communication skills. While he was doing well, his parents wanted a new solution to help Luca build his confidence. After exploring their options, they met with a pediatric plastic surgeon at Cohen Children’s Medical Center who had performed the world’s first ear reconstruction using cadaver cartilage a few years prior. Using a 3D-printed model of Luca’s right ear, the doctor shaped a similar ear from cartilage and surgically attached it in only an hour. When Luca returned to his kindergarten class, he was beaming with confidence. A few months later, the doctor repositioned Luca’s ear and will continue to add details in the months to come. Today, Luca always has a smile on his face and loves that he can wear sunglasses just like his mom, dad, and little brother.  

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Daniella’s Drive

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